VII International Conference on Rare Diseases and  Orphan Drugs  

Please visit the local conference website for the program:
http://www.prip-tokyo.jp/icord2012/

The General assembly was held in at Komaba Research campus, The University of Tokyo  (only for members)_______________________________________________________

VENUE: Convention Hall, University of Tokyo, Japan

DATES: 4-6 February 2012 

WHAT
A global meeting on international cooperation and public health policies focussing on research, diagnosis, development of and access to treatment, and care for rare diseases, will be held in Tokyo.

WHO should attend?
The VII ICORD Conference will offer a platform for the exchange of perspectives for medical and healthcare professionals, patients and patients’ groups, basic and clinical researchers, policy-makers, government officers and pharmaceutical, biotechnology and medical device industries.

CONFERENCE ORGANIZATION
The conference is organized by a global panel of ICORD to improve the welfare and wellbeing of patients with rare diseases and their families world-wide through better knowledge, research, treatment, care, information, education and awareness of rare diseases.

The number of patients with each rare disease is very small in each country, but rare diseases do not know country boundaries. Consequently, they are best studied internationally.  Attend this conference for the opportunity to join discussions of the ideas and global needs of the rare disease community. You will also meet key members of the international community involved in policies, diagnosis and treatment of patients with rare diseases.

The themes are:

• Research
• Diagnosis
• Treatment
• Orphan drugs
• Health policies on rare diseases and orphan drugs globally
• Ethical issues and social aspects of rare diseases
• International networking
• Patients’ needs