FULFILLED AND REMAINING UNMET NEEDS FOR RARE DISEASES: THE FUTURE OF ICORD
20-21 September 2018
Arranged by ICORD (International Conferences on Rare Diseases and Orphan Drugs) in collaboration with the Karolinska University Hospital and Karolinska Institutet
ICORD warmly welcomes you to Stockholm to discuss the unmet needs of Rare Diseases patients, and the future of ICORD
FULFILLED AND UNMET NEEDS OF RARE DISEASES
ICORD is an International Society for all individuals active in rare diseases and/or orphan drugs, including health care, research, academic, industry, patients, patient groups, regulatory authorities, health authorities, and public policy professionals. During recent decades, the awareness on problems associated with Rare Diseases has increased markedly. Moreover, the international collaboration on Rare Diseases has improved. However, there are still many unmet needs for patients with Rare Diseases, not least in developing countries.
One aim of ICORD 2018 is to review needs that have been fulfilled and, in particular, to highlight important remaining unmet needs for patients with Rare Diseases in a global perspective.
THE FUTURE OF ICORD
During the last 15 years, 2004-2018, the Karolinska University Hospital and the Karolinska Institute have hosted the ICORD secretariat. Based on remaining important unmet needs for patients with Rare Diseases, and how ICORD can serve to meet these needs, alternative future scenarios for ICORD location and directions will be discussed.
We have pre-reserved rooms for the ICORD 2018 conference. These rooms are available in a limited number and reservations are managed on a first come-first serve basis.
Please download the pdf for information about the hotels, directions and maps.
ICORD 2018 Directions and Hotels (pdf, opens in new window)
In contrast to previous years, there will not be any free abstract presentations, nor poster sessions at this meeting.
Registration is open. Please register here (opens in a new tab)
Registration fees until 31 August 2018:
Conference full fee (non-members) 225 EUR
Conference reduced fee (ICORD members) 175 EUR
Conference fees includes refreshments during breaks, two lunches, and the conference dinner.
Conference dinner for accompanying persons 70 EUR
Late registration is accepted until 12 September at higher rates (+75 EUR)
Cancellation polices: No refund for late cancellations (after 31st of August). 50% refund of the registration fee at cancellations before the 1st of September.
ICORD MEMBERS MEETING
The ICORD General Assembly (for ICORD members only) will take place on the 21st of September, 2018 at 10.30-12.30.
Manuel Posada, Ann Nordgren, Steve Groft, Jan-Inge Henter, Désirée Gavhed, Emilio Roldán, Domenica Taruscio, Yukiko Nishimura
LOCAL ORGANIZING COMMITTEE
Ann Nordgren, Désirée Gavhed, Jan-Inge Henter, Ida Hed Myrberg, Elisabet Bergsten
Warmly welcome to ICORD 2018!