• Identifying and Meeting Patient and Family Needs Across the Lifespan Anders Olauson
• Discussion on small CT: brief overview of perspective and way forward Annalisa Trama
• European Clinical Research Infrastructures Network Arrigo Schieppati on behalf of ECRIN
• Recruiting Patients for Clinical Research Studies and the Value of International Collaboration Domenica Taruscio
• Human Biospecimen Database Elisa Eiseman
• Methodological Issues on Clinical Trials with Small Sample Size Joachim Gerss, Wolfgang Köpcke
• Collaboration Education and
  Test Translation Program Giovanna Spinella
• Ensuring the Quality of Genetic Testing Lisa Kalman
• Genetic Testing in the US: The GeneTests Perspective Roberta A. Pagon
• Codification and Classification of Rare Diseases Ségolène Aymé
• Orphanet Database of clinical labs Ségolène Aymé
• Balancing the importance of getting some information vs. the importance of getting good quality information Simon Day
• Technology transfer in the European Research Area K. Torbjörn Ingemansson
• Grupo de Enlace, Investigación y Soporte Enfermedades Raras Virginia Llera
• The Eurobiobank
  Network Yann Le Cam

The presentations are only available in Powerpoint.