Welcome to ICORD!

International Conferences for
Rare Diseases and Orphan Drugs


  • ICORD presentation at EURORDIS ERTC meeting – Brussels
    In February 2015, ICORD accepted an invitation from EURORDIS to present at its Round Table of Companies meeting, under the agenda of “Rare Disease – Going Global”. The message about ICORD’s place in the rare disease policy agenda, our Yukiwariso Declaration, and our cooperative links with other rare disease stakeholders, was presented by ICORD board member Marlene Haffner, on behalf of ICORD President John forman. Click here to view the slide presentation.



*Invitation for expressions of interest to host the 2017 and 2018 ICORD meeting*
ICORD members are welcome to send their expression of interest to host the annual ICORD meeting 2017 to the Secretariat by email: icord@karolinska.se. ICORD also welcomes expressions of interest for the annual ICORD meeting 2018.




The ICORD mission is to improve the welfare of patients with rare diseases and their families world-wide through better knowledge, research, care, information, education and awareness.

ICORD is an International Society for all individuals active in rare diseases and/or orphan drugs, including health care, research, academic, industry, patient organizations, regulatory authorities, health authorities, and public policy professionals

In order to achieve our aims, ICORD organises annual International Conferences

Do you want to become a member of the Society?
Updated: April 30, 2015