Welcome to ICORD!
International Conferences for
Rare Diseases and Orphan Drugs
- ICORD presentation at EURORDIS ERTC meeting – Brussels
In February 2015, ICORD accepted an invitation from EURORDIS to present at its Round Table of Companies meeting, under the agenda of “Rare Disease – Going Global”. The message about ICORD’s place in the rare disease policy agenda, our Yukiwariso Declaration, and our cooperative links with other rare disease stakeholders, was presented by ICORD board member Marlene Haffner, on behalf of ICORD President John forman. Click here to view the slide presentation.
- The ICORD 2014 Annual Conference, The Netherlands
A conference report and slide presentations from the ICORD 2014 Annual Conference, Oct 7-9, 2014 in Ede, The Netherlands, are available on the website. The abstracts from the ICORD 2014 meeting in Ede were published online in the RARE Journal, Vol 1, No 3 (2014)
*Invitation for expressions of interest to host the 2016 and 2017 ICORD meeting*
ICORD members are welcome to send their expression of interest to host the annual ICORD meeting 2016 to the Secretariat by email: email@example.com.
ICORD also welcomes expressions of interest for the annual ICORD meeting 2017. Please see further information in the following documents
Letter of intent ICORD annual meeting
Annual Meeting Proposal Submission Guidelines
- ICORD Declaration for policy and action plans for rare diseases – The “ICORD Yukiwariso Declaration” (PDF)
- Go to web page
The ICORD mission is to improve the welfare of patients with rare diseases and their families world-wide through better knowledge, research, care, information, education and awareness.
ICORD is an International Society for all individuals active in rare diseases and/or orphan drugs, including health care, research, academic, industry, patient organizations, regulatory authorities, health authorities, and public policy professionals